Friday, February 20, 2009

No more cast but.....

Yesterday was a long awaited day for Cassidy. She got to come to the office and have her cast removed after six weeks (if you ask her six very long weeks). Since I was working yesterday my sister dropped her off at the office after school. When she came she very nonchalantly says "oh by the way I broke out into hives today" Apparently they had been doing a rehearsal for the 5th grade program at school and she had been wearing a shawl. She and the teacher assumed it was just a reaction to that and didn't worry to much, my sister who works at the school even supplied a little Benydral for her. The problem was the shawl only covered her arms and she had spots all over her body. Not only that but they weren't itchy at all as hives generally are. Now I'm not sure anybody remembers but in my last post I mentioned that the anti-seizure med Cass is on can cause horrible rashes that can even put kids in the burn unit. My mother/nurse worries were raised when I saw the rash. Luckily I work for a doctor and we just happened to be in his office. He declared it to indeed be the beginning of a lamictal rash and said to stop the med immediately. The interesting part is Cass is still taking a very small dose of the medicine. She is working her way up to taking 100mg in the morning and another 100mg before bed. Now she is only taking 25mg morning and night. So the dose is not even half what she should be taking. As was suggested I didn't give her the evening dose and put a call into her neurologist and she agreed. Cass is not to take any more med until the day before we see the doctor in a few weeks and then she will take one 25mg dose the night before we go in. Cross your fingers and say your prayers that they find something that works without horrible side effects. The good thing about lamictal is that it has very few side effects and the rash is very very rare! Oh Cassidy what are we going to do with you!!!!

1 comment:

Carmell said...

Oh Karin, I hope everything gets figured out, and a new no side effects solution will come up soon. It sounds like Cassidy is being quite a trooper though. Keep us posted.