Friday, April 24, 2009
Update on Cassidy's Epilepsy
I haven't posted about Cass for a while and thought I'd get everyone up to speed with what we are currently doing for her. I have really struggled with this diagnosis and what is best for her. I have had a hard time with what the neurologist wanted and felt was best. As you know Cass had a pretty severe reaction to the first med that we tried. In fact her reaction was reported to the drug companies because it happened on so low of a dose - anyway the next med that they tried had a severe side effect of psychosis. I could not bring myself to feel good about it. After fasting and praying about it I decided not to give it to her. This did not impress her neurologist at all. She said that most anti-seizure meds are broken down in the liver and that for some reason this is associated with rashes and obviously Cass has an issue with this. The med she was recommending is one of the few used for partial seizures that is broken down in the kidneys instead of the liver. While she was willing to try something else she felt that I was being "paralyzed by anxiety" and "not making decisions in the best interest of my child". In the meantime I had been hearing alot of good things about an alternative route of treatment. There is a man in our area by the name of Destin Thayne and he is what some would call a "witch doctor". He heals by alternative meds using herbs and things like that. When I took Cassidy in for her appointment with him I was surprised that he didn't ask any questions about why we were there he simply went about his business of testing her. He uses a computer that has a device that looks like a large computer mouse, with a metal pad for each finger and the palm. This device sends electrical impulses through the nerve of the finger back to the major organs of the body and back to the computer - don't ask me how it works but he pegged Cassidy to a T. The first thing he asked her was how long she has been constipated. Honestly this has been a huge problem for Cassidy since she was 1 year old. We spent alot of time talking about that and he said that she did not produce the enzymes necessary for breaking down and digesting food. Because of this she is unable to absorb the needed minerals from the food that she eats. He also said she carries staph and strep and that she is fighting a super bad fungus infection. He said that his computer works on a opposite scale so that the level of zinc in the body on his chart should be 0 - Cassidy has a level of 1004! Meaning she pretty much has none - he also said she was very low on an amino acid called Taurine. After all this discussion he asked if there was anything else we would like to discuss. Cassidy very sarcastically said "you mean besides the fact that I have epilepsy?" He was surprised and reran the scan. He said that he treats people with epilepsy and they don't usually have to tell them they have it, he said that after 3 different scans no evidence of epilepsy was visible. He did say however that it has been shown that low levels of Taurine can cause seizures, especially partial seizures.... Cassidy is now taking several supplements including Taurine. She takes a digestive enzyme with each meal. We are hoping this will help and have way less side effects then the anti-seizure meds. Don't get the wrong idea, I am not totally opposed to treating her, it just hasn't felt right before now.